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MSWA Bulletin Magazine Autumn 17

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  • Mswa
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  • Autumn
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MSWA’S MAGAZINE FOR PEOPLE LIVING WITH MS NURSING Our MS nurses are usually the first point of contact after the neurologist’s diagnosis of MS. We’re committed to providing holistic supports; providing a greater understanding of what to expect. Lou Hatter, Manager: 9365 4809 or Community Nurse: 9365 4888 WILSON CENTRE 29 Parkhill Way (08) 9365 4888 Fax (08) 9451 4453 Freecall 1800 287 367 See Health Team Dept contacts on this page PHYSIOTHERAPY Our team aims to provide treatment interventions to develop and maintain mobility and function. Our physiotherapists are experts in movement and function, and work in partnership with you to attain the highest possible level of independence. Dave Hathorn, Manager: 9365 4837 or Physiotherapy Department: 9365 4834 MEMBER SERVICES DIRECTORY GENERAL MANAGER – MEMBER SERVICES Sue Shapland: 9365 4840 INDIVIDUAL OPTIONS Manager Community Care Programs, Gail Palmer: 9365 4851 NDIS TEAM 1800 287 367 OUTREACH GROUPS Wilson Outreach (Mon-Thurs): 9365 4830 Beechboro Lodge (Mon, Fri): 9377 7800 Southside Outreach (Fri): 9592 9202 Bunbury Outreach (Wed): 9791 2472 Albany Outreach (Fri): 9841 6657 BUNBURY OFFICE 1 Mason Street, Davenport 6454 2800 BUSSELTON OFFICE 1/21 Cammilleri Street 9754 2320 MARGARET DOODY RESPITE HOUSE Manager, Chris Rush: 9385 9574 FERN RIVER ACCOMMODATION Manager, Liz Stewart: 9356 2747 HAMILTON HILL ACCOMMODATION Manager, Jayne O’Sullivan: 9331 5780 TREENDALE GARDENS RESPITE & ACCOMMODATION Manager, Linda Kidd: 9725 9209 CONTACT US If you would like to comment on anything you read in this Bulletin please email bulletin@mswa.org.au or write to MSWA, Locked Bag 2, Bentley DC WA 6983 The Bulletin can also be viewed at mswa.org.au/bulletin EDITORIAL COMMITTEE Greg Brotherson (Editor), Marcus Stafford (CEO), David Bugden, Sue Shapland, Ros Harman, Bhavna Jagtiani, Libby Cassidy, Sandra Wallace, Narelle Taylor, Leonie Wellington, Sarah Lorrimar, and Dawn Burke. The Editor welcomes unsolicited submissions. All articles are subject to a reviewing process. The views expressed are those of the Authors and do not necessarily reflect the view of the Society’s staff, advisors, Directors or officers. OCCUPATIONAL THERAPY Occupational Therapists enable Members, and clients, to continue their work and other interests for as long as possible through advice, aids and equipment. Rosemarie Dravnieks, Manager: 9365 4804 or OT Department: 9365 4888 SPEECH PATHOLOGY Our Speech Pathologists provide support by assessing, diagnosing and creating individualised treatment programs for Members who experience swallowing and/or communication difficulties. We equip Members with information and strategies to promote better communication and safe swallowing. Jamaica Grantis, Speech Pathologist: 6454 3140 COUNSELLING Talking with a Counsellor creates a safe, respectful and confidential environment for you and those close to you to explore options, create change or gain understanding about your life. Attending counselling with our tertiary qualified practitioners enables opportunity for personal growth and exploration in a nonjudgemental environment. To make an appointment please call: Lisa Papas, Manager: 9365 4836 or Main Counselling line: 9365 4811 SOCIAL WELFARE Social Welfare Officers assist people living with MS and their families to access services and supports to remain living independently at home. They specialise in case management, advocacy and sourcing funding options. They provide information on benefits and entitlements through Centrelink and other government departments. Irene Gallagher, Senior Social Welfare Officer: 9365 4835 INDIVIDUAL OPTIONS We provide long-term and time limited in-home supports including assistance with personal care for people with MS, to help them remain in their homes. Care and supports are provided through a combination of funding from the Disability Services Commission (DSC) and our own fundraising efforts. We manage both DSC and NDIS individually funded care packages. Contact us on 9365 4851 for more information. THE NDIS TEAM We provide a convenient and fast one stop shop to enable you to easily transition to the NDIS as it becomes available in your area. We help you determine whether you are eligible for assistance under the NDIS; we guide you through the application process and then we help you develop a comprehensive NDIS plan to maximize your entitlements. We support people with all neurological conditions. Mark Douglas, NDIS Operations Manager: 9365 4824 CAMPS & RECREATION MSWA provides separate recreation camps for Members, carers, and families, primarily funded by Lotterywest, and for a nominal cost to participants. These camps provide a break from daily routines, and strengthen friendships and support networks. Coordinator for Camps & Recreation: 9365 4843 2 | MSWA BULLETIN AUTUMN 2017

Letter from the Editor DR GREG BROTHERSON This is the first of four Bulletins you will receive this year and it is autumn already. Where did the time go? Mark Twain had the answer for the way time escapes us. He once said, “Let us adopt geologic time.” There is more but we have better things to do with our time. The big event this month is the opening of MSWA’s Community and Health Services Centre in Bunbury, which some might say was also a long time coming. I was fortunate enough to join members of the Board of Directors on 22 February when they inspected the building, and then took further time out to hold their monthly Board Meeting. The building is spacious and a wonderful asset for MSWA (more in the South West Regional Round-up Section on page 24). Being a regular visitor at Treendale Respite, I managed to catch up with Marie Harris, who was the first regular correspondent for the Bulletin. There has been a long and harmonious relationship between the Society’s management at Wilson and people with multiple sclerosis in Bunbury, dating back to 1979, when the Bunbury Outreach group were fundraising for MS. In 1983, the Society, then situated at Clontarf, was established enough to receive grants from the Lotteries Commission for air-conditioners for private homes, and wheelchair batteries, and branches in Bunbury, Busselton and Albany were established and mature enough to fundraise for themselves. Bunbury in particular was beginning to show signs of acting independently. In 1988 Bunbury was a step ahead of Perth, which had no respite service for young people in Perth nursing homes (the intent being to give these young people a holiday and their carer a break). Bunbury already had the South West Association for the Physically Handicapped (SWAPH), which Inside | Autumn 2017 Letter from the Editor 3 From the desk of the CEO 4 A message from the General Manager – Member Services 5 Round-up of research and other items of interest 6-8 MSWA enrols its 200th NDIS client! 9 MSWA Speech Therapy Services Update 10 Weekend physiotherapy service starting at Wilson 10 Peer Support Groups have returned for 2017! 11 muMS group 11 Are you a Procrastinator? 12-13 Rob’s Story 14-15 Special diets and multiple sclerosis 16-17 was receiving funding to provide an out-of-home respite service in Bunbury. To make use of this service, the Society would put a Member on the train in Perth, who would be met on arrival in Bunbury and transported by volunteers to the SWAPH respite home for a holiday. Perth Members flocked to Bunbury in such numbers that an application for a similar home in Perth resulted in the Margaret Doody Respite home at City Beach being built by the Society. If it wasn’t for SWAPH, our respite at Treendale and City Beach may have never existed. In July 1990, however, the Bunbury Outreach Group decided to look at breaking away from the Society, and set themselves up as an independent identity. Certain members of the Board at Wilson even went so far as to discuss the prospect with the CEO of the National Society, and a sub-Constitution for Bunbury was even considered (the wise men of the East never did fully understand MSWA’s unique Constitution). Concessions were made, an understanding reached and it was decided to pull together as a team. To help the bonding process, the editor of the Bulletin offered to publish a monthly Bunbury Outreach article, and so my long association with Marie Harris commenced. The result of Directors interfering in management in 1990 is one which will have to await the publishing of the History of MSWA later this year. Bunbury has always been a major supporter of the Society, clearly the bond is strong. MSWA Bunbury now has the finest Community and Health Services Centre anyone could possibly wish for, the result of cooperation not separation, and an expanding South West Regional Round-up section in the Bulletin. Thank you, Marie, for reminding me. Protect yourself against the flu 18 Weird Sisters 19 That’s life with Narelle 20 The fine art of a wonderful relationship 21 MSWA Massage comes to Geraldton! 21 MSWA Volunteering News 22-23 South West regional round up 24-25 Albany Outreach News 26 First Albany Staff Christmas function held in December 2016! 26 Busselton Outreach news 27 Wilson Outreach news 27 MSWA BULLETIN AUTUMN 2017 | 3

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