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MSWA Bulletin Magazine Autumn 2019

  • Text
  • Mswaorgau
  • Treendale
  • Butler
  • Funding
  • Neurological
  • Autumn
  • Accommodation
  • Ndis
  • Bulletin
  • Mswa
NDIS update | 2019 camps | Health education and peer support groups | Fundraising news

MSWA’S MAGAZINE FOR PEOPLE LIVING WITH MS NURSING Our MS nurses are usually the first point of contact after the neurologist’s diagnosis of MS. We’re committed to providing holistic supports; providing a greater understanding of what to expect. Lou Hatter, MS Specialist Nurse: 9365 4888 or Community Nurse: 9365 4888 LETTER FROM THE EDITOR DR GREG BROTHERSON WILSON CENTRE 29 Parkhill Way (08) 9365 4888 Fax (08) 9451 4453 Freecall 1800 287 367 See Health Team Dept contacts on this page MEMBER SERVICES DIRECTORY GENERAL MANAGER – MEMBER & CLIENT SERVICES Nicola Washington: 9365 4840 INDIVIDUAL OPTIONS Manager Community Care Programs 9365 4851 NDIS TEAM 9365 4824 OUTREACH GROUPS Wilson Outreach (Mon-Thurs): 9365 4830 Beechboro Lodge (Mon, Fri): 9377 7800 Southside Outreach (Fri): 9592 9202 Albany Outreach (Fri): 9841 6651 BUNBURY (WED) HUB 1 Mason Street, Davenport 6454 2800 BUSSELTON OFFICE 1/21 Cammilleri Street 9754 2320 MARGARET DOODY RESPITE HOUSE Manager, Chris Rush: 9385 9574 FERN RIVER ACCOMMODATION Manager, Danuta Figurska: 9356 2747 HAMILTON HILL ACCOMMODATION Manager, Jayne O’Sullivan: 9331 5780 TREENDALE GARDENS RESPITE & ACCOMMODATION 50 The Boulevard, Australind Manager, Linda Kidd: 9725 9209 BUTLER SERVICES CENTRE & SUPPORTED ACCOMMODATION FACILITY 245 Butler Boulevard, Butler Manager, Claudia Taylor: 9365 4888 CONTACT US If you would like to comment on anything you read in this Bulletin please email bulletin@mswa.org.au or write to MSWA, Locked Bag 2, Bentley DC WA 6983 The Bulletin can also be viewed at mswa.org.au/bulletin EDITORIAL COMMITTEE Greg Brotherson (Editor), Marcus Stafford (CEO), Paul Cavanagh, Sue Shapland, Ros Harman, Libby Cassidy, Caitlin Skinner, Sandra Wallace, Narelle Taylor, Leonie Wellington, and Dawn Burke. The Editor welcomes unsolicited submissions. All articles are subject to a reviewing process. The views expressed are those of the Authors and do not necessarily reflect the view of MSWA’s staff, advisors, Directors or officers. PHYSIOTHERAPY Our team aims to provide treatment interventions to develop and maintain mobility and function. Our Physiotherapists are experts in movement and function, and work in partnership with you to attain the highest possible level of independence. Dave Hathorn, Manager: 9365 4837 or Physiotherapy Department: 9365 4834 OCCUPATIONAL THERAPY Occupational Therapists enable Members, and Clients, to continue their work and other interests for as long as possible through advice, aids and equipment. Occupational Therapy Department: 9365 4888 SPEECH PATHOLOGY Our Speech Pathologists provide support by assessing, diagnosing and creating individualised treatment programs for Members who experience swallowing and/or communication difficulties. We equip Members with information and strategies to promote better communication and safe swallowing. Speech Pathology Department: 9365 4888 COUNSELLING, PEER SUPPORT & HEALTH EDUCATION Talking with a Counsellor creates a safe, respectful and confidential environment for you and those close to you to explore options, create change or gain understanding about your life. Attending counselling with our tertiary qualified practitioners enables opportunity for personal growth and exploration in a non-judgemental environment. We have a Peer Support & Health Education Coordinator who organises peer connection & events and supports health and wellness education services. She can be contacted on 9365 4858. To make an appointment please call: Lisa Papas, Manager: 9365 4836 or Main Counselling line: 9365 4811 SOCIAL WELFARE Social Welfare Officers assist people living with MS and their families to access services and supports to remain living independently at home. They specialise in case management, advocacy and sourcing funding options. They provide information on benefits and entitlements through Centrelink and other government departments. Monitor NDIS/WANDIS Services. Kath Knights, Manager: 9365 4835 INDIVIDUAL OPTIONS We provide long-term and time limited in-home supports including assistance with personal care for people with MS, to help them remain in their homes. Care and supports are provided through a combination of funding from the Disability Services, Department of Communities and our own fundraising efforts. We manage both DSC and NDIS individually funded care packages. Aileen Ward, Manager: 9365 4851 for more information. THE NDIS TEAM We can help answer all NDIS questions. Our experienced team can help determine whether you may be eligible for NDIS support and assist you with your application. This includes developing an individual plan that best suits your needs. We support people with all neurological conditions including MS, Stroke, Parkinson’s Disease, Huntington’s Disease, Acquired Brain Injury and Motor Neurone Disease, to name a few. Geoff Hutchinson, Manager NDIS Business Development: 9365 4879 CAMPS & RECREATION MSWA provides separate recreation camps for Members, carers, and families, primarily funded by Lotterywest, and for a nominal cost to participants. These camps provide a break from daily routines, and strengthen friendships and support networks. Coordinator for Camps & Recreation: 9365 4843 DIETITIANS are university-qualified nutrition experts who promote general health and disease prevention/management through dietary changes. They provide evidence-based dietary counselling and education, empowering individuals, with practical strategies, to meet their goals and improve health, wellbeing and independence. Dietitians Department: 9365 4888 On behalf of the Editorial Committee, welcome to your first Bulletin for the year. We have pleasure bringing all the latest news to you, but here it is all about us and you. We need your help. Every part of the organisation is subject to an audit and refreshing, and the Bulletin magazine is no exception. We think Bulletin is pretty good but of course we are biased! INSIDE AUTUMN 2019 LETTER FROM THE EDITOR 3 FROM THE DESK OF THE CEO 4 A MESSAGE FROM THE GENERAL MANAGER – STRATEGIC SUPPORTS AND RESIDENTIAL OPTIONS 5 A MESSAGE FROM THE GENERAL MANAGER – MEMBER & CLIENT SERVICES 6 MSWA QUALITY EVALUATION 2018 7 MS RESEARCH ROUND UP 8-10 PROTECT AGAINST THE FLU THIS YEAR 10 MSWA PROVIDES GRANT OF 0,000 FOR RESEARCH INTO MOTOR NEURONE DISEASE 11 NDIS UPDATE 12 HEALTH EDUCATION AND PEER SUPPORT GROUPS 13 FIND SOME TIME IN YOUR DAY TO PLAY 14 MAKING A VISION BOARD 15 SMART EATING WEEK 16-17 MS AUSTRALIA NATIONAL ADVOCATES MEETING NOVEMBER 2018 17 Do you want to receive the Bulletin online? Want monthly information updates? Register your email address today to start receiving our monthly Vitality e-newsletter or the Bulletin magazine online. Email damien.hill@mswa.org.au or call 9365 4814 and let us know your current email address. Whilst we receive positive feedback in our annual survey we would also love to hear from our readers. How is the content for you? Is there something else you would like to see in the Bulletin? Please let us know by emailing us at: bulletin@mswa.org.au 2019 CAMPS 18 WHERE DOES COURAGE COME FROM..? 19 THE NEW INTERNATIONAL DYSPHAGIA DIET STANDARDISATION INITIATIVE 20 WASTE NOT, WANT NOT 21 THE JOHN STUDDY AWARD 22 BUTLER SUPPORTED ACCOMMODATION NOW OPEN 22 NEW HOME FOR KATE IN BUTLER 23 FUNDRAISING NEWS 24-25 MSWA EVENT PARTICIPANTS FUNDING EQUIPMENT PURCHASES 25 SUMMER UPDATE 26 TREENDALE GARDENS ACCOMMODATION NEWS 27 FERN RIVER NEWS 27 SOUTHSIDE OUTREACH NEWS 27 2 | MSWA BULLETIN AUTUMN 2019 MSWA BULLETIN AUTUMN 2019 | 3