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MSWA Bulletin Magazine Autumn 2019

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  • Mswaorgau
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  • Neurological
  • Autumn
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NDIS update | 2019 camps | Health education and peer support groups | Fundraising news

THE JOHN STUDDY AWARD

THE JOHN STUDDY AWARD MSWA COMMUNICATIONS NEW HOME FOR KATE IN BUTLER MSWA COMMUNICATIONS The John Studdy Award is Multiple Sclerosis Australia’s most prestigious Award, given annually in recognition of outstanding and selfless provision of meritorious service to people living with MS, at either National or State/Territory level, preferably over a period in excess of 10 years. The standard of this service is to be of such high status that ‘the nominee has made, or is making, a tangible difference’ for the benefit of people living with MS and/or their families or carers. We are delighted to announce that Board Member, Bulletin contributor, and MSWA Member Ros Harman was one of the 2018 recipients. Ros Harman was first diagnosed with MS at the age of 26. Her early career included being a school teacher, and a Human Resources and Training Manager for a medium-sized Our latest accommodation facility at Butler has arrived! What was a block of sandy land in the early days, is now a wonderful MSWA Services Centre and Supported Accommodation facility. The 10-unit accommodation facility, with self-contained units, their own courtyards and three communal areas including a theatre room, lounge, dining rooms and courtyards is amazing. The décor is beautiful, and it really feels like a home for the new residents. Our accommodation provides a home for residents living with MS and other neurological conditions. We have 24/7 onsite care and provide supports and security whilst promoting independence and choice. Thanks to our cooks the food is amazing! I am new to MSWA and it has given me great pleasure hiring a team of over 25 professional care support workers. This amazing new accommodation with a modern ‘Hamptons’ look presents supported living in a stylish yet practical way, and it’s truly refreshing. company. Many years ago, Ros initiated and pioneered a parents’ support group, and is widely felt to be an inspirational role model for people with MS and for women in particular. She has served on the MSWA Board since 2004, and is an ambassador for MSWA, representing the organisation on all forms of electronic media and is an active ambassador within political circles. Ros is Vice President of the Board, Chair of Member (Client) Services Committee and Chair of the Research Committee. Her stewardship has led MSWA’s position as the leading funder of MS research. Her past roles within MSWA have also included Editor of the Bulletin magazine and director roles that included fundraising. Ros is a regular public speaker at events and functions, promoting the involvement and participation of people with disabilities. BUTLER SUPPORTED ACCOMMODATION NOW OPEN CLAUDIA TAYLOR MANAGER, MSWA MANAGER – BUTLER ACCOMMODATION Leading the Butler team and welcoming and supporting our residents and their families from their first day arriving at Butler Accommodation, has been a pleasure. The many smiles, laughter and community spirit that has been built from the ground up is amazing. I look forward to sharing further news with you in the future and bringing you along on our journey. I would like to thank everyone at MSWA; all the staff, the various teams and departments and the wonderful residents that have made this all possible. In 2005, Kate Gild was diagnosed with multiple sclerosis (MS) when she was 33 years of age. She was living in London at the time and home in Perth on holiday visiting family, when she started experiencing nerve pain in her wrist. Kate thought it was carpal tunnel syndrome, but an MRI revealed it was MS. “At the time I didn’t know much about MS, and after receiving my diagnosis, I realised I had been living with some symptoms for a while. I would fall over for no reason or find I could not walk properly which I had put down to being clumsy. I also had tingling in my right hand that I thought was carpal tunnel syndrome, which my mum and grandma both had. I was very scared,” Kate said. Now in an electric wheelchair, life has been a roller coaster for Kate and her family, but she considers herself fortunate to have called MSWA Treendale Gardens home for the last three years. The facility just outside of Bunbury in the State’s beautiful South West, provides high-support, state of the art accommodation and respite for people with neurological conditions. There, Kate accessed 24-hour care and nursing, and allied health including physiotherapy and Outreach at the Community and Health Services Centre in Bunbury. However, the 46-year-old wanted to be closer to her family and was very excited when she discovered that MSWA was building an million high-support accommodation and services facility in WA’s northern suburbs of Butler. Butler Centre will be a one-stop-shop for people living with MS and all neurological conditions, offering a range of services such as physiotherapy, counselling, nursing, and peer group sessions, and will be a base for staff co-ordinating home support. The adjoining development provides high-support accommodation facility equipped with 10 fully self-contained units for people living with neurological conditions. As soon as Kate found out about the development, she put her name down to apply for one of the units. “I'm so excited to be living in the Butler community. I had been living in Treendale for almost three years and my life was fine but it's just so far away from my friends and family. I’ve missed them so much,” said Kate. The facility will provide permanent accommodation options for people who can no longer stay in their own homes. They offer an age appropriate option for younger people who would otherwise find themselves entering aged care facilities, due to their high care needs. Kate is looking forward to the simple things like having friends over for a coffee or going to her parents’ house which has proved difficult whilst living regionally. “The onsite care and support will allow me to lead a fulfilling and independent life. The train station is down the road and there is a services hub next door. I can take myself to my physiotherapy sessions or go grocery shopping. I can’t begin to tell you what that means to me,” added Kate. “MSWA is thrilled to be opening a purpose-built centre for people like Kate who are living with neurological conditions. Residents will have their own self-contained unit and shared communal area where they can socialise via a high-support accommodation facility which includes onsite 24-hour, 7-day a week care for younger people who may have otherwise had to face the very real prospect of living in an aged care facility,” MSWA CEO, Marcus Stafford AM said. “These developments are made possible by the ongoing support of MSWA by generous Western Australians who buy tickets in our Mega Home Lotteries, take part in events like MSWA Ocean Ride and make bequests and donations. We thank all of our supporters very much.” Mr Stafford added that the Butler Centre was part of the organisation’s long-term, strategic growth plan which will continue to develop a network of facilities in regional areas such as Albany. “We’ve found that the number of people using our highsupport accommodation facilities has grown and I predict that we’ll see the same thing happen in Butler. To manage the ongoing demand over the coming years we have a major building program planned, both in the metropolitan area and regional Western Australia. As well as bricks and mortar we also want to continually increase the services we provide to our customers and the number of hours’ worth of services that we provide.” 22 | MSWA BULLETIN AUTUMN 2019 MSWA BULLETIN AUTUMN 2019 | 23