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MSWA Bulletin Magazine Autumn 2019

  • Text
  • Mswaorgau
  • Treendale
  • Butler
  • Funding
  • Neurological
  • Autumn
  • Accommodation
  • Ndis
  • Bulletin
  • Mswa
NDIS update | 2019 camps | Health education and peer support groups | Fundraising news

MARCUS STAFFORD “It

MARCUS STAFFORD “It always seems impossible until it's done.” Nelson Mandela. From the desk of the CEO “Nothing great was ever achieved without enthusiasm.” Ralph Waldo Emerson. A message from the General Manager – Strategic Supports and Residential Options SUE SHAPLAND RN, BN, Cert MS Nursing, MSCN Welcome to the first edition of the 2019 Bulletin magazine. In many respects this quote defines our journey with the National Disability Insurance Scheme (NDIS), which continues to roll out across the State. It’s a lot of work for our Customers but it will be worth it once you have your plan in place. I’m proud to announce the opening of our newly built million Services Centre and Supported Accommodation Facility in Butler. Sue Shapland, General Manager – Strategic Supports & Residential Options will give our Members a warm welcome to Butler in this edition and you will get to hear from MSWA Member, Kate Gild who was the first resident to move into her new home there. Recognising the large proportions of our State, we are always considering how we can cater to all of our regional Members. MSWA is proposing to build a new Services Centre and High Support Accommodation facility in Albany which is currently in the planning and proposal stage. These Centres could not be built without the strong foundations of our ongoing commercial activities and financial success. We have a new General Manager – Member and Client Services, Nicola Washington who has a great wealth of experience and will manage our continued growth in Member and Client Services. With three quarters of the budget year behind us, I am pleased to report that our million investment into neurological research is contributing to fantastic results and we will keep you updated as the research progresses. I am pleased to announce MSWA’s involvement with another leading WA not-for-profit, the West Australian Symphony Orchestra (WASO), for their 2019 season. MSWA will be partnering with WASO for their ‘Under 30s’ program, which will allow anyone under the age of 30 to pay just for tickets to a range of concerts across the 2019 program. Our partnership will also provide benefits and special offers for our MSWA Members throughout the season. This will include access to special performances as well as a standard ‘MSWA’ discount, to name just a few of the benefits! It has been long understood that music is powerful! We now know that the benefits of music extend to the wellbeing of motor and cognitive skills and overall brain health. It is very fitting therefore, for us to partner with WASO in helping them make music more accessible to the younger market, particularly at a time when more and more young people’s lives are touched by the effects of a neurological condition. The results are in for the MSWA reginal events Albany Ride and Albany Swim, which saw over 300 participants raise more than ,000. The Great Southern region has once again demonstrated their support for people living with neurological conditions. Congratulations and thank you for your continued support. Our largest fundraising initiative, the Mega Home Lottery, once again sold out in a record number of weeks earlier this month. I would like to thank all of our dedicated staff involved who deliver outstanding results for our Customers, and our generous supporters who purchase tickets. As MSWA continues to support people living with all neurological conditions, the need for more tailored and larger premises is needed. Our time in the leased property in Bentley has now come to an end and Belmont is our new home from April. Initially it will provide a base for the Administration, Marketing and Finance personnel, and Member and Client services equipment will be stored in the warehousing facility already on the land. Over time, the premises will become dualpurpose with extended Member and Client services being made available in the first instance to the newly diagnosed and low support Members and Clients. World MS Day is fast approaching on Thursday, 30 May and MSWA will once again have an opportunity for you to get involved. Plus, our annual Step Up for MSWA (the stair-climb of Perth’s tallest building) is Sunday, 30 June. Until next time! I recently found some great quotes by Ralph Emerson, very worth a Google search! I think this quote is very relevant for us at MSWA. We have achieved, and will continue to achieve, great success driven by enthusiastic, passionate and caring staff and volunteers across the whole organisation. You may notice my role title has changed? Due to ongoing expansion across all parts of Member and Client Services, particularly over the past three to five years, the General Manager role became too big for one person. We have strategically divided the role and welcomed Nicola Washington as the General Manager Member and Client Services, in November last year. My new role now focuses on key aspects of Safety and Quality, Strategic projects including the allocation of Research funding, and our expanding Residential Options including accommodation and respite. Our teams have been busy as we have opened the 10-unit accommodation facility at Butler; what an amazing place it is. Thanks to Andrea Taylor who contributed to most aspects of the facility, including the design and décor which has turned it into a home. Sandra Wallace played a major role in fit out as part of her Project Management role and the results are gratifying. Everyone who visits, and of course the residents and their families and friends, are blown away by the design and set out. It’s pretty impressive but more importantly, the residents love their new homes and the support provided by our onsite staff. Albany is our next location for another major build featuring another Services Centre and High Support Accommodation facility. We will keep you posted regarding the timelines once we have a start date. Of course, building these Centres wouldn’t be possible without the ongoing success we experience, through hard work and sound financial management, through our Lotteries, events, and investments. We can buy the land and build these Centres to our own design, which really is quite unique in our sector. Our team will be working hard to ensure we comply with the National Disability Insurance Scheme (NDIS) Quality and Safeguarding Framework which is expected to commence in 2020. Our residential respite homes at City Beach and Treendale, are experiencing increased demand and more Members are including respite funding in their NDIS package which provides funding for 24-hour care. If you need any assistance with developing your NDIS plan or would like to know more about respite options, don’t hesitate to contact us through Get-in-touch@mswa.org.au or the NDIS team by email ndisenquiries@mswa.org.au We also have a fantastic 3-bedroom Family Unit at Treendale where you can book a stay. If you need assistance with care, that also can be arranged onsite. One of the best aspects of my role is the Research component. MSWA proudly allocated million to neurological research this financial year. In November, MSWA was added to the UWA Benefactor Wall in recognition of the funding provided to WA researchers linked with UWA. Our allocation to MSRA was .5 million, with a third of that dedicated to the International Progressive MS Alliance, and additional MS funding was allocated to important projects and key staffing positions at the Perron Institute. What is also really exciting is the funding we have allocated to projects supporting research into other major neurological conditions including MND and Stroke. Many of our MSWA event participants have allocated the funds they raised to support people living with other neurological conditions, here in WA. This has amounted to over 0,000 since 2016! MSWA has purchased vital equipment on behalf of the major hospitals, outpatient services and rehab centres which benefits a greater number of patients over time. We have also expanded the MND loan equipment pool and replaced old equipment initially purchased using DSC funding for the NCCC Program. Liaising with the hospital staff to buy much-needed equipment for their patients is another really rewarding part of my role! 2019 is shaping up as another busy but rewarding year and the continued NDIS roll out will see more of our Members benefit from accessing the funding they need to support them to live a better life. The difference MSWA makes is really quite amazing and it’s what spurs our staff on to dig deeper and do more. If you need any advice or information about MS or MSWA services, don’t hesitate to telephone 9365 4888 or use the Get-in-touch@mswa.org.au link. 4 | MSWA BULLETIN AUTUMN 2019 MSWA BULLETIN AUTUMN 2019 | 5

Bulletin