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MSWA Bulletin Magazine Autumn 2020

A fresh look for NDIS support We’re all in this together – a message from our CEO Myth busting the stigma of attending counselling Food matters

NURSING WILSON CENTRE 29

NURSING WILSON CENTRE 29 Parkhill Way 9365 4888 Fax 9451 4453 Freecall 1800 287 367 See Health Team Dept contacts on this page MEMBER SERVICES DIRECTORY GENERAL MANAGER – MEMBER & CLIENT SERVICES Nicola Washington 9365 4840 MANAGER OF ALLIED HEALTH SERVICES Carol Chong 9365 4873 NDIS TEAM 9365 4824 OUTREACH GROUPS Wilson Outreach 9365 4830 Beechboro Lodge 9377 7800 Southside Outreach 9592 9202 Albany Outreach 6154 5149 Bunbury 6454 2800 GENERAL MANAGER - STRATEGIC SUPPORT AND RESIDENTIAL OPTIONS Sue Shapland 6454 3174 MARGARET DOODY RESPITE HOUSE Manager, Chris Rush 9385 9574 FERN RIVER ACCOMMODATION Manager, Danuta Figurska 9356 2747 HAMILTON HILL ACCOMMODATION Manager, Jayne O’Sullivan 9331 5780 TREENDALE GARDENS RESPITE & ACCOMMODATION Manager, Linda Kidd 9725 9209 BUTLER SUPPORTED ACCOMMODATION FACILITY Manager 6154 5120 CONTACT US If you would like to comment on anything you read in this Bulletin please email bulletin@mswa.org.au or write to MSWA, Locked Bag 2, Bentley DC WA 6983 General feedback or complaints please contact Liz Stewart 6454 3173 or feedback@mswa.org.au EDITORIAL COMMITTEE Greg Brotherson (Editor), Ros Harman (Guest Editor), Marcus Stafford (CEO), Paul Cavanagh, Sue Shapland, Nicola Washington, Libby Cassidy, Jamey Claffey, Carol Chong, Aileen Ward and Geoff Hutchinson. The Editor welcomes unsolicited submissions. All articles are subject to a reviewing process. The views expressed are those of the authors and do not necessarily reflect the view of MSWA’s staff, advisors, directors or officers. Our MS nurses are usually the first point of contact after the neurologist’s diagnosis of MS. JILL CROMBIE, MANAGER: 9365 4888 OR COMMUNITY NURSE: 9365 4888 PHYSIOTHERAPY Our team aims to provide treatment interventions to develop and maintain mobility and function. DAVE HATHORN, MANAGER: 9365 4837 OR PHYSIO DEPARTMENT: 9365 4834 OCCUPATIONAL THERAPY Occupational Therapists enable Members to continue their work and other interests for as long as possible through advice, aids and equipment. ILISSA LIEW, MANAGER: 9365 4804 OR OT DEPARTMENT: 9365 4888 SPEECH PATHOLOGY Our Speech Pathologists provide support by assessing, diagnosing and creating individualised treatment programs for Members who experience swallowing and/or communication difficulties. PAMELA WINDRAM, MANAGER: 6454 3140 DIETITIANS Dietitians are university-qualified nutrition experts who promote general health and disease prevention/management through dietary changes. PAMELA WINDRAM, MANAGER: 6454 3140 COUNSELLING, PEER SUPPORT & HEALTH EDUCATION Talking with a Counsellor creates a safe, respectful and confidential environment for you and those close to you to explore options, create change or gain understanding about your life. We have a Peer Support & Health Education Coordinator who organises peer connection & events and supports health and wellness education services. TO MAKE AN APPOINTMENT PLEASE CALL: LISA PAPAS, MANAGER: 9365 4836 OR COUNSELLING DEPARTMENT: 9365 4811 SOCIAL WELFARE Social Welfare Officers assist Members and their families to access services and supports to remain living independently at home. They specialise in case management, advocacy and sourcing funding options. KATH KNIGHTS, MANAGER: 9365 4835 INDIVIDUAL OPTIONS We provide long-term and time limited in-home supports including assistance with personal care for people with MS, to help them remain in their homes. Care and supports are provided through a combination of funding from the Department of Communities - Disability Services, and our own fundraising efforts. AILEEN WARD, MANAGER: 9365 4851 CUSTOMER ENGAGEMENT DEPARTMENT Our experienced teams will provide you with personalised support right throughout your NDIS journey. From helping you to access the NDIS to working with you to get the most from your plan, our trained staff are here to help. GEOFF HUTCHINSON, MANAGER CUSTOMER ENGAGEMENT: 9365 4879 CAMPS & RECREATION MSWA provides separate recreation camps for Members, carers, and families, primarily funded by Lotterywest, and for a nominal cost to participants. These camps provide a break from daily routines, and strengthen friendships and support networks. COORDINATOR FOR CAMPS & RECREATION: 9365 4843 CONTENTS LETTER FROM THE EDITOR. ............... 3 FROM THE DESK OF THE CEO .............. 4 GENERAL MANAGER STRATEGIC SUPPORTS AND RESIDENTIAL OPTIONS . .............. 5 GENERAL MANAGER MEMBER & CLIENT SERVICES. ............. 6 MSWA RESEARCH CONTRIBUTIONS. .......... 7 RESEARCH ROUND UP ................. 8-10 PROTECTING YOURSELF IN THE FLU SEASON. ..11 NURSING SERVICE IN THE ERA OF THE NDIS . . 12 FRESH LOOK FOR NDIS SUPPORT. .......... 13 ENHANCING POSITIVE RELATIONSHIPS . ..... 14 MYTH BUSTING THE STIGMA OF ATTENDING COUNSELLING. ............... 15 FOOD MATTERS. ....................... 16 KINDNESS OF HEART MAKES FOR AN IDEAL CARE SUPPORT WORKER. ......... 17 FAME AND TIM. ........................ 18 ACCESSIBILITY: STATE THEATRE OF WA. ..... 19 FUNDRAISING NEWS ................. 20-21 RECREATION SNAPSHOT . ................ 22 TAKE UP THE CHALLENGE OF GOLF. ........ 23 NEWS FROM OUR OUTREACH CENTRES. .. 24-25 HAMILTON HILL ACCOMMODATION NEWS. .... 26 TREENDALE GARDENS NEWS . .............. 26 BUTLER ACCOMMODATION NEWS. .......... 27 VOLUNTEER UPDATE . ....................28 FROM THE EVENTS TEAM ................. 29 EMPOWERED TO LIVE WELL ...............30 HAVE YOUR SAY – BE PART OF OUR FEEDBACK COMMUNITY ............... 31 2

WELCOME Welcome to the autumn edition of Bulletin, the first edition of 2020. It is my pleasure to be stepping in as editor of this edition while Greg Brotherson takes a break. Autumn is a time of welcome reprieve after the long hot summer, and we all enjoy the cooler mornings, the balmy days, and the pleasant evenings. This autumn has been overshadowed with the coronavirus pandemic, and many people may be anxious about it or frustrated by the new rules, the shopping shortages and so on. Rest assured, MSWA is complying with all the recommended measures to keep our Members, Clients and staff safe. Apart from that, for MSWA it is business as usual as we continue to provide support and care for people with MS and other neurological conditions. This edition of Bulletin will keep you up to date with our services and activities, and provide a wealth of useful information to help you in your day to day life. In this edition we acknowledge and celebrate the service of several staff members. Also, our newest residential facility at Butler has just celebrated its first anniversary and has become a welcome home for ten people who know they will receive the care they need while living in attractive surroundings. People with disabilities often feel they are left out of outdoor or sporting activities, but in our feature article about Paragolf, Sailability, Bowlability, and other organisations which provide opportunities for everyone to access various sporting and leisure activities, you may be inspired to have a go yourself in future. We also have an update on the latest from our dietitians, as well as an interesting article about the unnecessary stigma some people may feel when seeking counselling. Our usual Research Roundup gives us the latest information from around the world on the scientific progress into understanding MS and other neurological conditions. The NDIS continues to roll out, providing Customers with direct funding for their various needs. MSWA has a Customer Engagement Department which helps people negotiate the NDIS, and Geoff Hutchinson shares information in this Bulletin about their services. On behalf of the Editorial Committee, I would like to wish you happy reading. ROS HARMAN GUEST EDITOR 3

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