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MSWA Bulletin Magazine Spring 2019

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  • Bulletin
  • Neurological
  • Disability
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  • Accommodation
  • Ndis
  • Mswa

NURSING WILSON CENTRE 29

NURSING WILSON CENTRE 29 Parkhill Way 9365 4888 Fax 9451 4453 Freecall 1800 287 367 See Health Team Dept contacts on this page MEMBER SERVICES DIRECTORY GENERAL MANAGER – MEMBER & CLIENT SERVICES Nicola Washington 9365 4840 MANAGER OF ALLIED HEALTH SERVICES Carol Chong 9365 4873 NDIS TEAM 9365 4824 OUTREACH GROUPS Wilson Outreach (Mon-Thurs) 9365 4830 Beechboro Lodge (Mon, Fri) 9377 7800 Southside Outreach (Fri) 9592 9202 Albany Outreach (Fri) 6154 5149 Bunbury (Wed) 6454 2800 GENERAL MANAGER - STRATEGIC SUPPORT AND RESIDENTIAL OPTIONS Sue Shapland 6454 3174 MARGARET DOODY RESPITE HOUSE Manager, Chris Rush 9385 9574 FERN RIVER ACCOMMODATION Manager, Danuta Figurska 9356 2747 HAMILTON HILL ACCOMMODATION Manager, Jayne O’Sullivan 9331 5780 TREENDALE GARDENS RESPITE & ACCOMMODATION Manager, Linda Kidd 9725 9209 BUTLER SUPPORTED ACCOMMODATION FACILITY Manager, Claudia Taylor 6154 5120 CONTACT US If you would like to comment on anything you read in this Bulletin please email bulletin@mswa.org.au or write to MSWA, Locked Bag 2, Bentley DC WA 6983 General feedback or complaints please contact Liz Stewart 6454 3173 or feedback@mswa.org.au EDITORIAL COMMITTEE Greg Brotherson (Editor), Marcus Stafford (CEO), Paul Cavanagh, Sue Shapland, Nicola Washington, Ros Harman, Libby Cassidy, Lizzie Thelwell, Carol Chong, Aileen Ward and Geoff Hutchinson. The Editor welcomes unsolicited submissions. All articles are subject to a reviewing process. The views expressed are those of the authors and do not necessarily reflect the view of MSWA’s staff, advisors, directors or officers. Our MS nurses are usually the first point of contact after the neurologist’s diagnosis of MS. JILL CROMBIE, MANAGER: 9365 4888 OR COMMUNITY NURSE: 9365 4888 PHYSIOTHERAPY Our team aims to provide treatment interventions to develop and maintain mobility and function. DAVE HATHORN, MANAGER: 9365 4837 OR PHYSIO DEPARTMENT: 9365 4834 OCCUPATIONAL THERAPY Occupational Therapists enable Members to continue their work and other interests for as long as possible through advice, aids and equipment. ILISSA LIEW, MANAGER: 9365 4804 OR OT DEPARTMENT: 9365 4888 SPEECH PATHOLOGY Our Speech Pathologists provide support by assessing, diagnosing and creating individualised treatment programs for Members who experience swallowing and/or communication difficulties. PAMELA WINDRAM, MANAGER: 6454 3140 DIETITIANS Dietitians are university-qualified nutrition experts who promote general health and disease prevention/management through dietary changes. PAMELA WINDRAM, MANAGER: 6454 3140 COUNSELLING, PEER SUPPORT & HEALTH EDUCATION Talking with a Counsellor creates a safe, respectful and confidential environment for you and those close to you to explore options, create change or gain understanding about your life. We have a Peer Support & Health Education Coordinator who organises peer connection & events and supports health and wellness education services. TO MAKE AN APPOINTMENT PLEASE CALL: LISA PAPAS, MANAGER: 9365 4836 OR COUNSELLING DEPARTMENT: 9365 4811 SOCIAL WELFARE Social Welfare Officers assist Members and their families to access services and supports to remain living independently at home. They specialise in case management, advocacy and sourcing funding options. KATH KNIGHTS, MANAGER: 9365 4835 INDIVIDUAL OPTIONS We provide long-term and time limited in-home supports including assistance with personal care for people with MS, to help them remain in their homes. Care and supports are provided through a combination of funding from the Department of Communities - Disability Services, and our own fundraising efforts. AILEEN WARD, MANAGER: 9365 4851 THE NDIS TEAM Our experienced team can help determine whether you may be eligible for NDIS support and assist you with your application. This includes developing an individual plan that best suits your needs. GEOFF HUTCHINSON, MANAGER NDIS BUSINESS DEVELOPMENT: 9365 4879 CAMPS & RECREATION MSWA provides separate recreation camps for Members, carers, and families, primarily funded by Lotterywest, and for a nominal cost to participants. These camps provide a break from daily routines, and strengthen friendships and support networks. COORDINATOR FOR CAMPS & RECREATION: 9365 4843 CONTENTS LETTER FROM THE EDITOR. ............... 3 FROM THE DESK OF THE CEO .............. 4 GENERAL MANAGER STRATEGIC SUPPORTS AND RESIDENTIAL OPTIONS . ...... 5 GENERAL MANAGER MEMBER & CLIENT SERVICES ..................... 6 LIFESPAN PERSPECTIVE ON MENTAL HEALTH BY OLDER ADULTS WITH MS – A WA STUDY. .... 7 RESEARCH ROUND UP ................. 8-10 OILY FISH CONSUMPTION MAY PROTECT AGAINST DEVELOPING MS. ................11 UNDERSTANDING ADVANCE CARE PLANNING . .. 12 NOT SO HARD TO SWALLOW. .............. 13 NDIS SUPPORT COORDINATION . ........... 14 NDIS FEEDBACK THE KEY TO DRIVING CHANGE. ................... 15 FEEDBACK IS THE BREAKFAST OF CHAMPIONS!. . 15 KIDS LEARNING ABOUT MS. ............... 16 VOLUNTEERING. ....................... 17 CHRIS MORGAN: FASTEST MAN IN AUSTRALIA WITH MS. ................. 18 ANIMAL FARM. ........................ 19 MS NO OBSTACLE TO ACHIEVING GOALS. .....20 THAT’S LIFE WITH NARELLE. ............. 21 FERN RIVER NEWS ..................... 22 TREENDALE GARDENS ACCOMMODATION AND RESPITE. ........... 22 BUTLER ACCOMMODATION NEWS. .......... 23 LIFE IN BALANCE . .....................24 THE POWER OF MUSIC . ................. 25 FUNDRAISING NEWS .................26-27 2

LETTER FROM THE EDITOR WELCOME On behalf of the editorial committee, welcome to the spring edition of your Bulletin. In this edition we provide you with a window into the management of MSWA with the very latest news from our CEO Marcus Stafford, and senior managers Sue Shapland and Nicki Washington. Sue brings you her research roundup and a special research article undertaken as a requirement for the Master of Psychology at Edith Cowan University (ECU), which Sue has been involved with. These combined interviews, the author tells us, is the overall story of the lived experiences of older adults with MS and their lifespan perspective on mental health. Elsewhere we bring you articles from our counsellors, occupational therapists and volunteers. We are always thankful for our dedicated volunteers, who are prepared to ride the volatile waves caused by multiple sclerosis with our Members. Our usual friends, Ros Harman and Narelle Taylor, continue to provide us with their worldview from their particular perspective. You will also find everything you want to know about the NDIS. Because of the support from you, our readers, the Bulletin is able to survive the incredible pressure from other media platforms on the internet. Countless times the message is that anything paper will not survive the invasion of technology on our lives. Yet here we are again, this quarter, with no intention of leaving. I often give the magazine’s future some thought, like now. At the university where I taught science and history and received my PhD nineteen years ago, in 2000, it was impossible to conceive how the components we now take for granted would consume our lives. It is this experience of before and after, which has my generation pontificating about the effects of this technology, and how this little magazine continues to thrive. It is my belief that technology also enables people to link up, to form connections with people to whom they are best suited. Technology helps people to look for others of a like mind, encouraging them to come together. Then of course, in our case, there is the ‘elephant in the room’; that nasty piece of work named multiple sclerosis. It is with this collaborative spirit, that we here at the Bulletin treadmill feel we are with like-minded friends, and together formulate our worldview. This rotten disease may well blight our lives, but we can gain strength if we share our experiences and stay together. We would love to hear from you. DR GREG BROTHERSON EDITOR 3