NURSING WILSON CENTRE 29

NURSING WILSON CENTRE 29 Parkhill Way 9365 4888 Fax 9451 4453 Freecall 1800 287 367 See Health Team Dept contacts on this page MEMBER SERVICES DIRECTORY GENERAL MANAGER – MEMBER & CLIENT SERVICES Nicola Washington 9365 4840 MANAGER OF ALLIED HEALTH SERVICES Carol Chong 9365 4873 NDIS TEAM 9365 4824 OUTREACH GROUPS Wilson Outreach 9365 4830 Beechboro Lodge 9377 7800 Southside Outreach 9592 9202 Albany Outreach 6154 5149 Bunbury 6454 2800 GENERAL MANAGER - STRATEGIC SUPPORTS AND RESIDENTIAL OPTIONS Sue Shapland 6454 3174 MARGARET DOODY RESPITE HOUSE Manager, Alimul Tasin 9385 9574 FERN RIVER ACCOMMODATION Manager, Danuta Figurska 9356 2747 HAMILTON HILL ACCOMMODATION Manager, Jo Nouwland 9331 5780 TREENDALE GARDENS RESPITE & ACCOMMODATION Manager, Linda Kidd 9725 9209 BUTLER SUPPORTED ACCOMMODATION FACILITY Manager, Chris Rush 6154 5120 CONTACT US If you would like to comment on anything you read in this Bulletin please email bulletin@mswa.org.au or write to MSWA, Locked Bag 2, Bentley DC WA 6983 General feedback or complaints please contact Liz Stewart 6454 3173 or feedback@mswa.org.au EDITORIAL COMMITTEE Greg Brotherson (Editor), Ros Harman (Guest Editor), Marcus Stafford (CEO), Paul Cavanagh, Sue Shapland, Nicola Washington, Libby Cassidy, Jamey Claffey, Carol Chong and Geoff Hutchinson. The Editor welcomes unsolicited submissions. All articles are subject to a reviewing process. The views expressed are those of the authors and do not necessarily reflect the view of MSWA’s staff, advisors, directors or officers. Our MS nurses are usually the first point of contact after the neurologist’s diagnosis of MS. VANISHREE CHETTI, MANAGER: 9365 4818 OR COMMUNITY NURSE: 9365 4888 PHYSIOTHERAPY Our team provides treatment interventions to develop and maintain mobility and function. DAVE HATHORN, MANAGER: 9365 4837 OR PHYSIO DEPARTMENT: 9365 4834 OCCUPATIONAL THERAPY Occupational Therapists enable Members to continue their work and other interests for as long as possible through advice, aids and equipment. MANAGER: 9365 4804 OR OT DEPARTMENT: 9365 4888 SPEECH PATHOLOGY Our Speech Pathologists assess, diagnose and create individualised treatment programs for Members who experience swallowing and/or communication difficulties. PAMELA WINDRAM, MANAGER: 6454 3140 DIETETICS Dietitians are university-qualified nutrition experts who promote general health and disease prevention/management through dietary changes. PAMELA WINDRAM, MANAGER: 6454 3140 COUNSELLING, PEER SUPPORT & HEALTH EDUCATION Talking with a Counsellor creates a safe, respectful and confidential environment for you and those close to you to explore options, create change or gain understanding about your life. TO MAKE AN APPOINTMENT PLEASE CALL: LISA PAPAS, MANAGER: 9365 4836 OR COUNSELLING DEPARTMENT: 9365 4811 SOCIAL WELFARE Social Welfare Officers assist Members and their families to access services and supports to remain living independently at home. They specialise in case management, advocacy and sourcing funding options. KATH KNIGHTS, MANAGER: 9365 4835 COMMUNITY SUPPORT We provide long-term and time limited in-home supports including assistance with personal care for people with MS, to help them remain in their homes. Care and supports are provided through a combination of funding from the Department of Communities - Disability Services, and our own fundraising efforts. MANAGER: 9365 4851 CUSTOMER ENGAGEMENT DEPARTMENT Our experienced teams will provide you with personalised support right throughout your NDIS journey. From helping you to access the NDIS to working with you to get the most from your plan, our trained staff are here to help. GEOFF HUTCHINSON, MANAGER CUSTOMER ENGAGEMENT: 9365 4879 CAMPS & RECREATION MSWA provides separate recreation camps for Members, carers, and families, primarily funded by Lotterywest, and for a nominal cost to participants. These camps provide a break from daily routines, and strengthen friendships and support networks. COORDINATOR FOR CAMPS & RECREATION: 9365 4843 AGED CARE MSWA delivers all levels of Home Care Packages to eligible people with a neurological condition who are over 65. Services are delivered by staff specifically trained in home care for older Australians who are living with a neurological condition. WENDY BROWN, AGED CARE COORDINATOR: 9365 4807 CONTENTS LETTER FROM THE EDITOR. ............... 3 FROM THE DESK OF THE CEO .............. 4 NEW MSWA PRESIDENT. .................. 5 MSWA PROPERTY UPDATE. ................ 5 GENERAL MANAGER STRATEGIC SUPPORTS AND RESIDENTIAL OPTIONS . .............. 6 GENERAL MANAGER MEMBER & CLIENT SERVICES. ............. 7 RESEARCH ROUND UP ................. 8-10 RESEARCH IN FOCUS. ....................11 INDEPENDENCE DAY . ................... 12 SUPPORT COORDINATION – HELPING YOU NAVIGATE YOUR NDIS PLAN. .... 13 TAKING IN THE BREATH . . . . . . . . . . . . . . . . . .14 EXERCISE PHYSIOLOGY AT MSWA. .......... 15 FOR RICHER, FOR POORER. ............. 16-17 VISITING NARELLE ..................... 18 A BEAUTIFUL LIFE . ................. 20-21 MINDFULNESS FOR BEGINNERS . .......... 22 TAKING A BREAK IN OUR RESPITE HOMES . ... 23 THE AUSTRALIAN MS LONGITUDINAL STUDY (AMSLS) IS LOOKING FOR PARTICIPANTS. .... 23 CAMPS ARE BACK!. ................. 24-25 MEDICATION UPDATE. ................... 25 VOLUNTEER UPDATE. ................... 26 DID YOU KNOW? . ....................... 27 PROTECTING YOURSELF AND OTHERS FROM THE FLU AND COVID-19 .............28 FEEDBACK AND COMPLAINTS. ............. 29 OUTREACH NEWS . ...................30-33 RECENT FUN AT TREENDALE GARDENS ........34 JAYNE O'SULLIVAN - 23 YEARS OF SERVICE ..... 35 2

WELCOME This spring edition of Bulletin is full of interesting articles. We are very happy to be able to report that – after taking precautionary measures earlier in the year to prevent the spread of COVID-19 – we have been able to open Outreach centres again. Many of our Customers have been enjoying the social interaction of Outreach groups and have benefited by being able to gather with friends again. Outreach groups around Perth and country centres have enjoyed many interesting activities in the second part of this year. In this edition you will read about camps that have been held for Members which allow people to get away from their usual routine and enjoy some fun. One camp was held at Treendale Respite Centre and another at Woodman Point. You will also read about Support Coordination, which is a service provided by MSWA to help people understand their NDIS plan and develop skills in utilising it. The organisation’s Annual General Meeting was held very recently and it was great to hear that despite the Coronavirus, our most recent Mega Home Lottery sold out in record time, ensuring that we remain profitable and able to continue to serve the needs of people with multiple sclerosis and other neurological conditions. At the AGM, George Pampacos announced his retirement from the role of President of the MSWA Board after serving two terms. George was an excellent president and brought many skills to the role, seeing MSWA successfully through six years of growth and prosperity. He will be missed and we wish him well as he pursues other interests and continues to further his career. We also had a report from CEO, Marcus Stafford, at the AGM who updated us on the continued success of MSWA in this testing year. MSWA staff took early and stringent precautions to protect against the virus, and it has served us well. No one associated with MSWA is known to have become infected, and we have continued to grow and serve our Customers well. In this Bulletin you will also read an article about long-term Member, Narelle Taylor, who many of you will remember as a regular contributor of humorous articles in this magazine. Narelle is doing very well and her story is a very interesting one. I hope you enjoy this fine spring weather and are able to get out into nature, where you can breathe deeply of the fresh air. I wish you all well. ROS HARMAN GUEST EDITOR 3