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MSWA Bulletin Magazine Spring 2022

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Celebrating 50 years of MSWA | Our commitment to research | New technology taking the pressure off | Water, life, the universe and everything!

WILSON CENTRE 29

WILSON CENTRE 29 Parkhill Way 9365 4888 Fax 9451 4453 Freecall 1800 287 367 See Health Team Dept contacts on this page SERVICES DIRECTORY CHIEF CLIENT OPERATIONS OFFICER – MEMBER & CLIENT SERVICES Nicola Washington 9365 4840 MANAGER ALLIED HEALTH SERVICES Carol Chong 9365 4873 NDIS TEAM 9365 4824 OUTREACH GROUPS Wilson Outreach 9365 4830 Beechboro Lodge 9377 7800 Southside Outreach 9592 9202 Albany Outreach 6154 5149 Bunbury 6454 2800 MANAGER CLINICAL SERVICES Vanishree Chetti 9365 4818 MARGARET DOODY RESPITE HOUSE Senior Coordinator, Nelly Higginson 9385 9574 FERN RIVER ACCOMMODATION Manager, Danuta Figurska 9356 2747 HAMILTON HILL ACCOMMODATION Manager, Jo Nouwland 9331 5780 TREENDALE GARDENS RESPITE & ACCOMMODATION Manager, Linda Kidd 9725 9209 BUTLER SUPPORTED ACCOMMODATION FACILITY Manager, Chris Rush 6154 5120 ALBANY SUPPORTED ACCOMMODATION FACILITY Manager, Kate Jones 6154 5085 CONTACT US If you would like to comment on anything you read in this Bulletin please email bulletin@mswa.org.au or write to MSWA, Locked Bag 2, Bentley DC WA 6983 For general feedback or complaints please contact Davina Sawyer 6454 3173 or feedback@mswa.org.au EDITORIAL WORKING GROUP Nicola Washington, Libby Cassidy, Emily Ace and Nicolette Murphy. CONTRIBUTORS Geoff Hutchinson, Carol Chong, Dajana Tesevic, Vanishree Chetti, Denise Vogels, James Beckett, Tracey Hockey, Misty Reinkowsky and Crystal Chan. The Editorial Working Group welcomes unsolicited submissions. All articles are subject to a reviewing process. The views expressed are those of the authors and do not necessarily reflect the view of MSWA’s staff, advisors, directors or officers. NURSING Our neurological liaison nurses are usually the first point of contact after the neurologist’s diagnosis. COMMUNITY NURSE: 9365 4888 PHYSIOTHERAPY Our team provides treatment interventions to develop and maintain mobility and function. JAMES BECKETT, MANAGER: 9365 4837 OR PHYSIO DEPARTMENT: 9365 4834 OCCUPATIONAL THERAPY Occupational Therapists enable Clients to continue their work and other interests for as long as possible through advice, aids and equipment. CRYSTAL CHAN, MANAGER: 9365 4804 OR OT DEPARTMENT: 9365 4888 SPEECH PATHOLOGY Our Speech Pathologists assess, diagnose and create individualised treatment programs for Clients who experience swallowing and/or communication difficulties. PAMELA WINDRAM, MANAGER: 6454 3140 DIETETICS Dietitians are university-qualified nutrition experts who promote general health and disease prevention/management through dietary changes. PAMELA WINDRAM, MANAGER: 6454 3140 COUNSELLING, PEER SUPPORT & HEALTH EDUCATION Talking with a Counsellor creates a safe, respectful and confidential environment for you and those close to you to explore options, create change or gain understanding about your life. TO MAKE AN APPOINTMENT PLEASE CALL: LISA PAPAS, MANAGER: 9365 4836 OR COUNSELLING DEPARTMENT: 9365 4811 SOCIAL WELFARE Social Welfare Officers assist Clients and their families to access services and supports to remain living independently at home. They specialise in case management, advocacy and sourcing funding options. KATH KNIGHTS, MANAGER: 9365 4835 COMMUNITY SUPPORT We provide long-term and time limited in-home supports including assistance with personal care for people with MS, to help them remain in their homes. Care and supports are provided through a combination of funding from the Department of Communities - Disability Services, and our own fundraising efforts. CUSTOMER SUPPORT TEAM, community.support@mswa.org.au CUSTOMER ENGAGEMENT DEPARTMENT Our experienced teams will provide you with personalised support right throughout your NDIS journey. From helping you to access the NDIS to working with you to get the most from your plan, our trained staff are here to help. GEOFF HUTCHINSON, MANAGER CUSTOMER ENGAGEMENT: 9365 4879 CAMPS & RECREATION MSWA provides separate recreation camps for Clients, carers, and families, primarily funded by Lotterywest, and for a nominal cost to participants. These camps provide a break from daily routines, and strengthen friendships and support networks. MALA PADMANATHAN, COORDINATOR FOR CAMPS & RECREATION: 6454 3184 AGED CARE MSWA delivers all levels of Home Care Packages to eligible people with a neurological condition who are over 65. Services are delivered by staff specifically trained in home care for older Australians who are living with a neurological condition. JAY NARROO, AGED CARE COORDINATOR: 6154 5194 EMPLOYMENT SUPPORT The MSWA Employment Support Service is the only specialist employment service for people living with multiple sclerosis in Western Australia and can help you to stay in your current job or find employment in the open labour market. LEIGH MCCAFFREY, EMPLOYMENT SUPPORT SERVICES MANAGER: 1300 865 209 WELCOME Welcome to the spring 2022 edition of Bulletin. We hope you enjoy the news, stories and service information we have brought to you this quarter. CONTENTS FROM OUR CEO. .................... 4 MEMBER AND CLIENT SERVICES. ... 5 A DECADE IN THE MAKING: MILLION COMMITTED TO NEUROLOGICAL RESEARCH OVER THE LAST DECADE. .......... 6 RESEARCHER IN FOCUS: REBECCA RUSSELL ON DIET AND MS ................... 7 THE NDIS PRICE GUIDE AND YOU. ........................ 8-9 NDIS FIVE YEAR LOOK AHEAD. ................... 10-11 JASMIN FRANKLIN: THE BIGGER PICTURE. ........... 12-13 50 YEARS OF MSWA ............. 14-15 LIVING WITH COVID-19. .............16 COUNSELLING: MORE THAN TALK THERAPY ........17 THE COMPENSATIONS OF GRIEF. .. 18 BOOK REVIEW: MAN’S SEARCH FOR MEANING. .....19 GET INVOLVED: FATIGUE MANAGEMENT. . . . . . . . . . . .20 NEW TECHNOLOGY TAKING THE PRESSURE OFF. ................21 SAY ‘CHEESE!’: LET’S KEEP DAIRY IN THE PICTURE. ......... 22-23 SPILLING THE BEANS ON CAFFEINE CONSUMPTION. ...... 24-25 WATER, LIFE, THE UNIVERSE AND EVERYTHING!. ............. 26-27 OUR COMMUNITY SUPPORTERS. ... 28 EVENT WRAP UP .................. 29 RESPITE: MY FIRSTHAND ACCOUNT. ...... 30-31 FAMILY SIZED FUN AT MSWA CAMPS. .............. 32-33 BUTLER SERVICE EXPANSION. ..... 34 FEEDBACK AND COMPLAINTS ..... 35 2 3

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