Publications | MSWA

Views
5 years ago

MSWA Bulletin Magazine Summer 2018

  • Text
  • Mswa
  • Ndis
  • Bulletin
  • Carers
  • Thickened
  • Australia
  • Multiple
  • Funding
  • Disability
  • Fibre

MSWA’S MAGAZINE FOR PEOPLE LIVING WITH MS NURSING Our MS nurses are usually the first point of contact after the neurologist’s diagnosis of MS. We’re committed to providing holistic supports; providing a greater understanding of what to expect. Lou Hatter, Manager: 9365 4888 or Community Nurse: 9365 4888 LETTER FROM THE EDITOR DR GREG BROTHERSON WILSON CENTRE 29 Parkhill Way (08) 9365 4888 Fax (08) 9451 4453 Freecall 1800 287 367 See Health Team Dept contacts on this page MEMBER SERVICES DIRECTORY GENERAL MANAGER – MEMBER SERVICES Sue Shapland: 9365 4840 INDIVIDUAL OPTIONS Manager Community Care Programs 9365 4851 NDIS TEAM 9365 4824 OUTREACH GROUPS Wilson Outreach (Mon-Thurs): 9365 4830 Beechboro Lodge (Mon, Fri): 9377 7800 Southside Outreach (Fri): 9592 9202 Albany Outreach (Fri): 9841 6651 BUNBURY (WED) HUB 1 Mason Street, Davenport 6454 2800 BUSSELTON OFFICE 1/21 Cammilleri Street 9754 2320 MARGARET DOODY RESPITE HOUSE Manager, Chris Rush: 9385 9574 FERN RIVER ACCOMMODATION Manager, Danuta Figurska: 9356 2747 HAMILTON HILL ACCOMMODATION Manager, Jayne O’Sullivan: 9331 5780 TREENDALE GARDENS RESPITE & ACCOMMODATION 50 The Boulevard, Australind Manager, Linda Kidd: 9725 9209 CONTACT US If you would like to comment on anything you read in this Bulletin please email bulletin@mswa.org.au or write to MSWA, Locked Bag 2, Bentley DC WA 6983 The Bulletin can also be viewed at mswa.org.au/bulletin EDITORIAL COMMITTEE Greg Brotherson (Editor), Marcus Stafford (CEO), Paul Cavanagh, Sue Shapland, Ros Harman, Libby Cassidy, Caitlin Skinner, Sandra Wallace, Narelle Taylor, Leonie Wellington, Rosemarie Dravnieks, and Dawn Burke. The Editor welcomes unsolicited submissions. All articles are subject to a reviewing process. The views expressed are those of the Authors and do not necessarily reflect the view of MSWA’s staff, advisors, Directors or officers. PHYSIOTHERAPY Our team aims to provide treatment interventions to develop and maintain mobility and function. Our Physiotherapists are experts in movement and function, and work in partnership with you to attain the highest possible level of independence. Dave Hathorn, Manager: 9365 4837 or Physiotherapy Department: 9365 4834 OCCUPATIONAL THERAPY Occupational Therapists enable Members, and Clients, to continue their work and other interests for as long as possible through advice, aids and equipment. Rosemarie Dravnieks, Manager: 9365 4804 or OT Department: 9365 4888 SPEECH PATHOLOGY Our Speech Pathologists provide support by assessing, diagnosing and creating individualised treatment programs for Members who experience swallowing and/or communication difficulties. We equip Members with information and strategies to promote better communication and safe swallowing. Jamaica Grantis, Manager: 6454 3140 COUNSELLING, PEER SUPPORT & HEALTH EDUCATION Talking with a Counsellor creates a safe, respectful and confidential environment for you and those close to you to explore options, create change or gain understanding about your life. Attending counselling with our tertiary qualified practitioners enables opportunity for personal growth and exploration in a non-judgemental environment. We have a Peer Support & Health Education Coordinator who organises peer connection & events and supports health and wellness education services. She can be contacted on 9365 4858. To make an appointment please call: Lisa Papas, Manager: 9365 4836 or Main Counselling line: 9365 4811 SOCIAL WELFARE Social Welfare Officers assist people living with MS and their families to access services and supports to remain living independently at home. They specialise in case management, advocacy and sourcing funding options. They provide information on benefits and entitlements through Centrelink and other government departments. Monitor NDIS/WANDIS Services. Kath Knights, Manager: 9365 4835 INDIVIDUAL OPTIONS We provide long-term and time limited in-home supports including assistance with personal care for people with MS, to help them remain in their homes. Care and supports are provided through a combination of funding from the Disability Services, Department of Communities and our own fundraising efforts. We manage both DSC and NDIS individually funded care packages. Aileen Ward, Manager: 9365 4851 for more information. THE NDIS TEAM We can help answer all NDIS questions. Our experienced team can help determine whether you may be eligible for NDIS support and assist you with your application. This includes developing an individual plan that best suits your needs. We support people with all neurological conditions including MS, Stroke, Parkinson’s Disease, Huntington’s Disease, Acquired Brain Injury and Motor Neurone Disease, to name a few. Geoff Hutchinson, Manager NDIS Business Development: 9365 4879 CAMPS & RECREATION MSWA provides separate recreation camps for Members, carers, and families, primarily funded by Lotterywest, and for a nominal cost to participants. These camps provide a break from daily routines, and strengthen friendships and support networks. Coordinator for Camps & Recreation: 9365 4843 DIETITIANS are university-qualified nutrition experts who promote general health and disease prevention/management through dietary changes. They provide evidence-based dietary counselling and education, empowering individuals, with practical strategies, to meet their goals and improve health, wellbeing and independence. Jamaica Grantis, Manager: 6454 3140 Welcome to your Summer edition of the MSWA Bulletin. Three announcements recently caught my eye as we commenced the task of compiling this edition. The first is that MSWA has recorded another outstanding result for this financial year, which you will read about in the article by our CEO, Marcus Stafford. You will also find a précised report on the 2018 Annual General Meeting which was on 25 October. There is something very comforting in the knowledge that you are supported by MSWA, the brightest star when measured against all the other Australian multiple sclerosis (MS) societies in the Southern Constellation. The second announcement of importance is the release of the Economic Impact of MS report, commissioned by MS Research Australia and successfully launched by the Prime Minister, the Hon Scott Morrison MP on 22 August 2018 at Parliament House in Canberra. As an aside, the Prime Minister’s brother in-law has multiple sclerosis. Commissioned by MS Research Australia and prepared by the Menzies Institute for Medical Research at the University of Tasmania, the executive summary of the Health Economic Impact of Multiple Sclerosis in Australia 2017 tells us that while the number of Australians living with MS continues to rise – now at 25,600, a rise of 20% – this is costing Australia .75 billion; an increase of ###COLUMNCONTENT###.51 billion since 2010. INSIDE SUMMER 2018 LETTER FROM THE EDITOR 3-4 FROM THE DESK OF THE CEO 5 A MESSAGE FROM THE GENERAL MANAGER – MEMBER AND CLIENT SERVICES 6 MEMBER SERVICES CHRISTMAS 2018 CLOSURES AND REDUCED COVER 7 ANNUAL GENERAL MEETING 2018 8-9 MS RESEARCH ROUND UP 10-11 HEALTH ECONOMIC IMPACT OF MULTIPLE SCLEROSIS IN AUSTRALIA IN 2017 12 OPEN DAY TO HELP WITH NDIS PLANS 13 ACCURATE NAVIGATION IS KEY TO NDIS SUCCESS 14-15 BALI BUDGET ON WHEELS 16-17 COMPUTERISED NUTRITION CHECK-UPS 18 DIETARY FIBRE 19 THE CAVEMAN MIND 20 The detailed cost of the condition ranges from ,561 for people with no disability, to 4,813 for people with severe disability. The more severe forms of the condition continue to take a heavy toll on those diagnosed including personal relationships and family. The good news is that disease modifying treatments (DMTs), are redirecting the course of the condition, with unemployment in decline and new strategies reducing the cost of care. There are now more people with MS still at work than previously. While the total cost is increasing, people who know about such matters explain that rising costs are mainly due to an increase in the number of people living with MS, and the cost of newer treatments. The average yearly cost for individuals (both direct and indirect), has increased by less than ,000 over the past seven years (from ,652 in 2010 to ,382 in 2017, or 17%). This is due to a significant reduction in lost wages (a third of the economic burden), and informal care costs for people with MS compared to 2010. It will be interesting to review this cost once the NDIS is fully rolled out, as more people with MS will have access to the levels of funding they need for supports and equipment. Continued over THERMOREGULATION 22-23 WHAT IS COGNITION? 24 REASONS WHY I MIGHT BE FALLING 25 COGNITION GROUP 25 QUENCHING YOUR THIRST 26 VOICE BANKING 27 MSWA CARERS SUPPORT PROGRAM CARERS GROUP’S REALITY 28 CELEBRATING CARERS 28 VOLUNTEER NEWS 29 THAT’S LIFE WITH NARELLE 30 HEARTACHE 31 ATTITUDINAL HEALING - SOME NEW-YEAR RESOLUTIONS 32 ACCESS TO THE MUSIC 33 SOUTH WEST REGIONAL NEWS ROUNDUP 34 GREAT SOUTHERN NEWS ROUNDUP 35 YOUR GRIEF FINGERPRINT 21 THE CANNING SHOW, WILSON OUTREACH 35 2 | MSWA BULLETIN SUMMER 2018 MSWA BULLETIN SUMMER 2018 | 3

Bulletin