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MSWA Bulletin Magazine Winter 18

  • Text
  • Mswa
  • Bulletin
  • Ndis
  • Carers
  • Outreach
  • Swallowing
  • Funding
  • Disability
  • Awareness
  • Accommodation

MSWA’S MAGAZINE FOR PEOPLE LIVING WITH MS NURSING Our MS nurses are usually the first point of contact after the neurologist’s diagnosis of MS. We’re committed to providing holistic supports; providing a greater understanding of what to expect. Lou Hatter, Manager: 9365 4888 or Community Nurse: 9365 4888 LETTER FROM THE EDITOR DR GREG BROTHERSON WILSON CENTRE 29 Parkhill Way (08) 9365 4888 Fax (08) 9451 4453 Freecall 1800 287 367 See Health Team Dept contacts on this page MEMBER SERVICES DIRECTORY GENERAL MANAGER – MEMBER SERVICES Sue Shapland: 9365 4840 INDIVIDUAL OPTIONS Manager Community Care Programs 9365 4851 NDIS TEAM 9365 4824 OUTREACH GROUPS Wilson Outreach (Mon-Thurs): 9365 4830 Beechboro Lodge (Mon, Fri): 9377 7800 Southside Outreach (Fri): 9592 9202 Albany Outreach (Fri): 9841 6657 BUNBURY (WED) HUB 1 Mason Street, Davenport 6454 2800 BUSSELTON OFFICE 1/21 Cammilleri Street 9754 2320 MARGARET DOODY RESPITE HOUSE Manager, Chris Rush: 9385 9574 FERN RIVER ACCOMMODATION Manager, Danuta Figurska: 9356 2747 HAMILTON HILL ACCOMMODATION Manager, Jayne O’Sullivan: 9331 5780 TREENDALE GARDENS RESPITE & ACCOMMODATION 50 The Boulevard, Australind Manager, Linda Kidd: 9725 9209 CONTACT US If you would like to comment on anything you read in this Bulletin please email bulletin@mswa.org.au or write to MSWA, Locked Bag 2, Bentley DC WA 6983 The Bulletin can also be viewed at mswa.org.au/bulletin EDITORIAL COMMITTEE Greg Brotherson (Editor), Marcus Stafford (CEO), Paul Cavanagh, Sue Shapland, Ros Harman, Libby Cassidy, Caitlin Skinner, Sandra Wallace, Narelle Taylor, Leonie Wellington, Sarah Lorrimar, and Dawn Burke. The Editor welcomes unsolicited submissions. All articles are subject to a reviewing process. The views expressed are those of the Authors and do not necessarily reflect the view of MSWA’s staff, advisors, Directors or officers. PHYSIOTHERAPY Our team aims to provide treatment interventions to develop and maintain mobility and function. Our Physiotherapists are experts in movement and function, and work in partnership with you to attain the highest possible level of independence. Dave Hathorn, Manager: 9365 4837 or Physiotherapy Department: 9365 4834 OCCUPATIONAL THERAPY Occupational Therapists enable Members, and Clients, to continue their work and other interests for as long as possible through advice, aids and equipment. Rosemarie Dravnieks, Manager: 9365 4804 or OT Department: 9365 4888 SPEECH PATHOLOGY Our Speech Pathologists provide support by assessing, diagnosing and creating individualised treatment programs for Members who experience swallowing and/or communication difficulties. We equip Members with information and strategies to promote better communication and safe swallowing. Jamaica Grantis, Manager: 6454 3140 COUNSELLING, PEER SUPPORT & HEALTH EDUCATION Talking with a Counsellor creates a safe, respectful and confidential environment for you and those close to you to explore options, create change or gain understanding about your life. Attending counselling with our tertiary qualified practitioners enables opportunity for personal growth and exploration in a non-judgemental environment. We have a Peer Support & Health Education Coordinator who organises peer connection & events and supports health and wellness education services. She can be contacted on 9365 4858. To make an appointment please call: Lisa Papas, Manager: 9365 4836 or Main Counselling line: 9365 4811 SOCIAL WELFARE Social Welfare Officers assist people living with MS and their families to access services and supports to remain living independently at home. They specialise in case management, advocacy and sourcing funding options. They provide information on benefits and entitlements through Centrelink and other government departments. Monitor NDIS/WANDIS Services. Irene Gallagher, Manager, Social Work: 9365 4835 INDIVIDUAL OPTIONS We provide long-term and time limited in-home supports including assistance with personal care for people with MS, to help them remain in their homes. Care and supports are provided through a combination of funding from the Disability Services, Department of Communities and our own fundraising efforts. We manage both DSC and NDIS individually funded care packages. Contact Aileen Ward, Manager on 9365 4851 for more information. THE NDIS TEAM We can help answer all NDIS questions. Our experienced team can help determine whether you may be eligible for NDIS support and assist you with your application. This includes developing an individual plan that best suits your needs. We support people with all neurological conditions including MS, Stroke, Parkinson’s Disease, Huntington’s Disease, Acquired Brain Injury and Motor Neurone Disease, to name a few. Contact Mark Douglas, NDIS Operations Manager: 9365 4824 CAMPS & RECREATION MSWA provides separate recreation camps for Members, carers, and families, primarily funded by Lotterywest, and for a nominal cost to participants. These camps provide a break from daily routines, and strengthen friendships and support networks. Coordinator for Camps & Recreation: 9365 4843 DIETITIANS are university-qualified nutrition experts who promote general health and disease prevention/management through dietary changes. They provide evidence-based dietary counselling and education, empowering individuals, with practical strategies, to meet their goals and improve health, wellbeing and independence. Jamaica Grantis, Manager: 6454 3140 The headline in The West Australian (April 30) was unmistakable. WA’s economy ‘in doghouse’. This negativity made little sense to me. Only a couple of days previously, I had been at a meeting which included an interstate visitor, where it was said with genuine feeling, that if a person received a diagnosis of multiple sclerosis, and that person also happened to be a Western Australian, then they are living in the best State at the best possible time. The reason behind this feeling is that MSWA is experiencing its best-ever year. If WA’s economy is in the ‘doghouse’, as the economic editor of The West would have us believe, historically not-for-profit charitable organisations like MSWA, catering for the needs of people with multiple sclerosis and similar neurological diseases, are the first to feel the effect of a cold breeze filtering through the economy. Such is not the case. While it is never easy fundraising (our CEO now has that telltale sprinkling of grey hair), MSWA will exceed all previous records. Beside a record donation for research into the cause of multiple sclerosis, with a generous amount set aside for similar neurological diseases, this year MSWA is also engaged in a massive update and refurbishment of its Wilson premises, has increased services to the membership, along with building a services, administration and supported-accommodation facility at Butler. This is a fantastic achievement. INSIDE WINTER 2018 LETTER FROM THE EDITOR 3 FROM THE DESK OF THE CEO 4 A MESSAGE FROM THE GENERAL MANAGER – MEMBER SERVICES 5 MS RESEARCH ROUND UP 6-8 PROTECT YOURSELF AGAINST THE FLU 9 ANNUAL MEMBER SURVEY 2017 10-11 CHLOE’S STORY 12 DIETETICS 13 NDIS UPDATE 14 A WINNER AND INSPIRATION IN OUR EYES 15 WHAT IS WELLNESS 16-17 THE RHYTHM OF LIFE 18 RENOVATIONS – WILSON PHYSIOTHERAPY DEPARTMENT 18 THE FUNDING OF ESSENTIAL EQUIPMENT 19 NURSES ARE THE HEARTBEAT OF HEALTHCARE 20 None of this would be possible, however, without the continuing generous and wonderful support of our fundraising efforts by the people of Western Australia, Lotteries Commission and State Government. If economic activity could be measured instead by the empathy and generosity of the people here in WA, then there is only clear air below Western Australia and the rest of the States and Territories. You can read all about this success story right here and straight from the people who are responsible. Producing this edition of your Bulletin has been a real team effort, and has appeared out of all the builder’s rubble, the renovations and people working out of temporary make-shift quarters. The managers and staff have really pulled something special out of the box for you this time. On behalf of the Editorial Committee here at the Bulletin treadmill, we would also like to thank you for your big tick of approval in Sue Shapland’s Annual Member Survey (included). Once again the Bulletin has come out on top and it is your support that fuels our enthusiasm. Thank you. SWALLOWING AWARENESS 22 YOUR VOICE MATTERS 23 SHAKESPEARE, BOB DYLAN AND NEUROPLASTICITY 24-25 SPEAK EASY 25 FUNDRAISING NEWS 26 PERTH ENTERTAINMENT REVIEW 27 A WINNING STRATEGY FOR LIVING 28 CARERS RETREATS 29 VOLUNTEERING 30-31 THAT’S LIFE WITH NARELLE 31 BEECHBORO OUTREACH NEWS 32 SOUTHSIDE OUTREACH NEWS 32 CENTRAL REGIONAL OUTREACH NEWS 33 SOUTH WEST REGIONAL NEWS ROUNDUP 33 GREAT SOUTHERN REGIONAL NEWS 34 DIGESTING SCIENCE 21 TAKE A BREAK IN THE SOUTH WEST 34 2 | MSWA BULLETIN WINTER 2018 MSWA BULLETIN WINTER 2018 | 3