Publications | MSWA

4 years ago

MSWA Bulletin Magazine Winter 18

  • Text
  • Mswa
  • Bulletin
  • Ndis
  • Carers
  • Outreach
  • Swallowing
  • Funding
  • Disability
  • Awareness
  • Accommodation


FUNDRAISING NEWS PERTH ENTERTAINMENT REVIEW SALLY NEWMAN, MSWA MEMBER Winners get the keys MSWA Mega Home Lottery, our biggest fundraiser! Never in a million years did Merriwa couple David Walsh and Aileen O’Toole expect to receive the phone call that interrupted their 7-month-old son’s bedtime routine on Wednesday, 11 April. It was a call to tell them they had just won the MSWA Mega Home Lottery Grand Prize. An incredible .25 million prize package, including a .65 million Webb & Brown- Neaves Sorrento Show Home, a Range Rover Velar and 0,000 cash. A prize that will set up the tight-knit family of three forever. “I was on the phone to my mate when my call waiting started to beep. I had no idea what was going on, but the lady on the phone said she was calling from MSWA and they had just drawn the lottery. I put the phone on loud speaker, as Aileen was in the room, and then we got the news. We had won the big one, the big prize. I couldn’t believe it, I couldn’t speak. Aileen was tearing up and screaming and I just couldn’t speak,” said David. Having worked in the disability and aged care sector for many years, Aileen knows first-hand how important and well used the money raised by the MSWA Mega Home Lottery is. “We’re so grateful, and it really couldn’t have come at a better time. It’s a huge weight off our shoulders. If anything should ever happen to us, our son Peter will be set,” said Aileen. “When I heard David and Aileen’s story I was absolutely thrilled for them. It’s a life-changing prize for a beautiful young family and I wish them all the best for their bright future. It’s because of the generosity of supporters like David and Aileen that allows us to make a huge difference to the lives of people living with multiple sclerosis and other neurological conditions in Western Australia,” said MSWA CEO, Marcus Stafford. “With the incredible support from fundraising activities like the MSWA Mega Home Lottery, this year we’ve been able to invest a record breaking .6 million dollars into research, committed million to build a new high-support accommodation facility in Butler, as well as providing more than 680,000 hours of essential services. So, to everyone who bought a ticket, thank you for your wonderful and ongoing support,” Marcus added. The next MSWA Mega Home Lottery will launch in August 2018. I guess the best way to start is a quick introduction of who I am. I am a Perth girl, a writer, and a loving mum to two young teenagers. Our family has always been into music and the arts and I wanted to bring some of that joy and excitement to my MS community. I have lived with MS for almost 20 years and am so grateful that my passion for writing allows me to share some of my experiences. Ladies get your lycra out and turn the crimper on, we are heading back to 1984. The 80s is an era that still gets the party going, a time when we idolised Cyndi Lauper and George Michael. Radios played Tina Turner, Kiss, Kenny Loggins (yes you know him, he sang Footloose), and Whitney Houston, Pseudo Echo and Wham topped the charts. Recently I attended The Big 80’s Party right here in Perth. I was a bit anxious heading out in my ra-ra skirt, polka dot scarf and leg warmers, however, once I arrived at the event I actually felt underdressed. I was surrounded by an explosion of neon and there were some brilliant costumes tributing Top Gun, Flash Dance, Madonna, Mr T, even Alf and Smurfs wandered around. Mr Feel Good, a young Warwick Capper look-alike was part of the roaming entertainment and added to the influx of mullets, denim and flannelette shirts on the day. Shadforth Financial Group Step Up for MSWA The annual Shadforth Financial Group Step Up for MSWA was held on Sunday, 17 June and was another fantastic day for all involved. A beautiful sunny morning saw over 1,000 participants conquer the 1,103 stairs to the top of Central Park. Thank you to everyone who either donated, participated, or came down on the day to show their support. Currently over 9,000 has been raised which will help MSWA continue to support thousands of people living with MS and other neurological conditions in Western Australia. MSWA Ocean Ride – Sunday, 25 November 2018 Now in its ninth year, the MSWA Ocean Ride – Powered by Retravision is the only community bike ride event of its kind within the metro area. The event has grown in numbers of participants, and now includes five ride distances to cater for all ages and capabilities, as well as a special Ride for MSWA Members. Join us today and put your body – and bike – on the line! Your support will make a difference to Western Australians living with MS and all neurological conditions. To find out more, please visit our website This event was held across Australia, with the Perth party on 5 May, 2018 at Oakover Grounds in Middle Swan. The venue was a fantastic choice for this 18+ event. ACROD parking was within 20 metres of the main entrance and for those not driving there were regular shuttle buses available. The flat lawn areas of Oakover Grounds offered ease of access for those with wheelchairs and/or mobility issues. There was a VIP section that also offered ease of access, including an alfresco dining section, first aid station and disabled toilet facilities. I attended the event with my walking frame and even on the dance floor, patrons and staff were accommodating and friendly. Yes, I passed through the dance floor a few times, but for the most part, sang badly and hand jived with complete strangers in the background of the mosh pit. The event began at one o’clock and as the spring afternoon drifted into night, the vibe of the party grew. Quoted by event organisers as “Arguably Australia’s BEST 80’s DJ’s”, Jaki J and Adrian Zac kept the dance floor full the entire time with a well selected mix of classic retro tunes. A video montage of television and movie moments we can never forget hit the big screen later in the night and the party ended with a Video Hits Massoake. Cliché yes, but seriously so much fun. It was easy to imagine being in the audience of a Countdown special, with hundreds of 80’s enthusiasts, singing on mass, “karma karma karma karma, karma, chameleon, we come and go, we come and go”… go on, admit it, you couldn’t resist singing those last few lines, could you? The Big 80’s Party Perth is set to return in 2019, so for any of you reading who are tempted to go and put a Madonna or Bon Jovi CD on right now, then I suggest you look out for the event next year. For now, my leg warmers and purple eye shadow are back in the cupboard and I prepare for my next adventure. 26 | MSWA BULLETIN WINTER 2018 MSWA BULLETIN WINTER 2018 | 27