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MSWA Bulletin Spring 16

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MSWA’S MAGAZINE FOR PEOPLE LIVING WITH MS NURSING Our MS nurses are usually the first point of contact after the neurologist’s diagnosis of MS. We’re committed to providing holistic supports; providing a greater understanding of what to expect. Lou Hatter, Manager: 9365 4809 or Community Nurse: 9365 4888 WILSON CENTRE 29 Parkhill Way (08) 9365 4888 Fax (08) 9451 4453 Freecall 1800 287 367 See Health Team Dept contacts on this page PHYSIOTHERAPY Our team aims to provide treatment interventions to develop and maintain mobility and function. Our physiotherapists are experts in movement and function, and work in partnership with you to attain the highest possible level of independence. Dave Hathron, Manager: 9365 4837 or Physiotherapy Department: 9365 4834 MEMBER SERVICES DIRECTORY GENERAL MANAGER – MEMBER SERVICES Sue Shapland: 9365 4840 INDIVIDUAL OPTIONS Manager Community Care Programs, Gail Palmer: 9365 4851 NDIS TEAM 1800 287 367 OUTREACH GROUPS Wilson Outreach (Mon-Thurs): 9365 4830 Beechboro Lodge (Mon, Fri): 9377 7800 Southside Outreach (Fri): 9592 9202 Bunbury Outreach (Wed): 9791 2472 Albany Outreach (Fri): 9841 6657 BUNBURY OFFICE 9 Ramsay Street 9791 2472 BUSSELTON OFFICE 1/21 Cammilleri Street 9754 2320 MARGARET DOODY RESPITE HOUSE Manager, Chris Rush: 9385 9574 FERN RIVER ACCOMMODATION Manager, Liz Stewart: 9356 2747 HAMILTON HILL ACCOMMODATION Manager, Jayne O’Sullivan: 9331 5780 TREENDALE GARDENS RESPITE & ACCOMMODATION Manager, Linda Kidd: 9725 9209 CONTACT US If you would like to comment on anything you read in this Bulletin please email bulletin@mswa.org.au or write to MSWA, Locked Bag 2, Bentley DC WA 6983 The Bulletin can also be viewed at mswa.org.au/bulletin EDITORIAL COMMITTEE Greg Brotherson (Editor), Marcus Stafford (CEO), David Bugden, Sue Shapland, Ros Harman, Libby Cassidy, Sandra Wallace, Narelle Taylor, Leonie Wellington, Bhavna Jagtiani, and Dawn Burke. The Editor welcomes unsolicited submissions. All articles are subject to a reviewing process. The views expressed are those of the Authors and do not necessarily reflect the view of the Society’s staff, advisors, Directors or officers. OCCUPATIONAL THERAPY Occupational Therapists enable Members, and clients, to continue their work and other interests for as long as possible through advice, aids and equipment. Sandra Wallace, Manager: 9365 4804 or OT Department: 9365 4888 SPEECH PATHOLOGY Our Speech Pathologists provide a targeted service addressing swallowing difficulties of our Members and clients. Education is given to understand the associated risks, and strategies for safe swallowing are recommended. Information may be given for language and articulation difficulties. Jamaica Grantis, Speech Pathologist: 6454 3140 COUNSELLING Talking with a Counsellor creates a safe, respectful and confidential environment for you and those close to you to explore options, create change or gain understanding about your life. Attending counselling with our tertiary qualified practitioners enables opportunity for personal growth and exploration in a nonjudgemental environment. To make an appointment please call: Lisa Papas, Manager: 9365 4836 or Main Counselling line: 9365 4811 SOCIAL WELFARE Social Welfare Officers assist people living with MS and their families to access services and supports to remain living independently at home. They specialise in case management, advocacy and sourcing funding options. They provide information on benefits and entitlements through Centrelink and other government departments. Irene Gallagher, Senior Social Welfare Officer: 9365 4835 INDIVIDUAL OPTIONS We provide long-term and time limited in-home supports including assistance with personal care for people with MS, to help them remain in their homes. Care and supports are provided through a combination of funding from the Disability Services Commission (DSC) and our own fundraising efforts. We manage both DSC and NDIS individually funded care packages. Contact us on 9365 4851 for more information. THE NDIS TEAM We provide a convenient and fast one stop shop to enable you to easily transition to the NDIS as it becomes available in your area. We help you determine whether you are eligible for assistance under the NDIS; we guide you through the application process and then we help you develop a comprehensive NDIS plan to maximize your entitlements. We support people with all neurological conditions. Mark Douglas, NDIS Operations Manager: 9365 4824 CAMPS & RECREATION MSWA provides separate recreation camps for Members, carers, and families, primarily funded by Lotterywest, and for a nominal cost to participants. These camps provide a break from daily routines, and strengthen friendships and support networks. Coordinator for Camps & Recreation: 9365 4843 2 | MSWA BULLETIN SPRING 2016

Letter from the Editor DR GREG BROTHERSON According to Professor Bruce Taylor of the Menzies Institute for Medical Research, disease-modifying therapies with proven effectiveness that reduce relapse have been available for people with multiple sclerosis in Australia since 1996. What is not known is whether those people on treatment will acquire less disability over the course of their disease than those who are untreated. What is known, however, is that worldwide near enough to half the 2.3 million people with multiple sclerosis have a progressive type of the disease. That is, if they were not diagnosed with primary progressive multiple sclerosis in the first place their relapsing-remitting multiple sclerosis has moved on to secondary progressive multiple sclerosis. There is no treatment for progressive types of MS which is why the International Progressive MS Alliance is so important. Research money raised by the Alliance is being channelled directly to the problem, Dr Giancarlo Comi from the Department of Neurology Scientific Institute in Milan tells us to gather together scientific experts to speed up new treatments to end progressive MS. You can read more about progressive MS in Sue’s research roundup article on page 7. In the previous issue of the Bulletin you may recall I asked for contributions from people with multiple sclerosis to tell your story on how you are ‘stronger than MS.’ Well the answers came, and in a most remarkable manner. The news from the Outreach Groups, with pictures, are absolutely fabulous. People are joining in, contributing and enjoying the organisation set up by their nimble-minded coordinators, and as people with multiple sclerosis, and as Inside | Spring 2016 Letter from the Editor 3 From the desk of the CEO 4 A message from the General Manager – Member Services 5 MSWA History Project 5 Round-up of research and other items of interest 6-7 Everything you wanted to know about the NDIS but were too afraid to ask 8-9 Overview on type 2 diabetes 10-11 Five tips for getting a mental health boost for people with MS 12 Dr Google – To believe or not to believe? 13 Employment Information Forums 14 Purchasing equipment? We recommend you speak to an OT first! 15 News from social welfare 16 New Perth Bus Port Information Links 16 muMS Group - A shared space to talk about motherhood and MS 17 Newly Diagnosed Seminar 17 a group of like-minded people, they convincingly prove that they are stronger than the disease. Their actions speak louder than words ever can. So is Dawn Burke’s news about the volunteers. People enjoy working as volunteers at MSWA because the people they are helping are doing their best to be stronger than MS. And MSWA is all that much better for it, once again proving to be stronger than the illness, a nasty piece of work at the best of times. In this issue of your Bulletin, you will also find a two-page spread by Nigel Carey, Manager NDIS Business Development, on page 8 which contains everything you want to know about the NDIS. There is also an added bonus of a magnificent hamper, if after having read the article, you are the first person to email Nigel with the correct answers to the three questions. There is an excellent article about self-compassion being your greatest ally when dealing with MS by MSWA Counsellor Simon Rolph. Dr Ong joins the conversation and talks about how important life skills are when dealing with calamitous situations. Of course there are our regular contributions from Ros Harman and Narelle Taylor, neither of whom are ever stopped short from living life to the fullest. Ros somehow always sees inside or through a situation to the meaningful side of what life has to offer. Narelle tells us what she and her family were doing when she was diagnosed, and she hasn’t taken her foot off the accelerator ever since. Coming from different directions, both ladies are inspirational. Self-Compassion: Our greatest ally 18-19 That’s life with Narelle 20 Anywhere with Colin 21 Life skills: What does it really cost? 22-23 MSWA awards Pharmacy 777 for their ongoing commitment 24 Fundraising Round Up 25 > Mega Home Lottery > Everywoman Expo > Dinner Auction Volunteering Update 26-27 iPad donation well-received by Fiona Stanley Hospital Medical Day Procedure Unit 28 Margaret Doody Respite House news 28 South West regional round up 29 Wilson Outreach news 30 Albany Outreach news 31 Beechboro Outreach news 31 Southside Outreach news 31 MSWA BULLETIN SPRING 2016 | 3

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