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MSWA Bulletin Winter 2019

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NURSING WILSON CENTRE 29

NURSING WILSON CENTRE 29 Parkhill Way 9365 4888 Fax 9451 4453 Freecall 1800 287 367 See Health Team Dept contacts on this page MEMBER SERVICES DIRECTORY GENERAL MANAGER – MEMBER & CLIENT SERVICES Nicola Washington: 9365 4840 MANAGER OF ALLIED HEALTH SERVICES Carol Chong: 9365 4873 NDIS TEAM 9365 4824 OUTREACH GROUPS Wilson Outreach (Mon-Thurs): 9365 4830 Beechboro Lodge (Mon, Fri): 9377 7800 Southside Outreach (Fri): 9592 9202 Albany Outreach (Fri): 9841 6651 Bunbury (Wed): 6454 2800 GENERAL MANAGER - STRATEGIC SUPPORT AND RESIDENTIAL OPTIONS Sue Shapland: 6454 3174 MARGARET DOODY RESPITE HOUSE Manager, Chris Rush: 9385 9574 FERN RIVER ACCOMMODATION Manager, Danuta Figurska: 9356 2747 HAMILTON HILL ACCOMMODATION Manager, Jayne O’Sullivan: 9331 5780 TREENDALE GARDENS RESPITE & ACCOMMODATION Manager, Linda Kidd: 9725 9209 BUTLER SUPPORTED ACCOMMODATION FACILITY Manager, Claudia Taylor: 6154 5120 CONTACT US If you would like to comment on anything you read in this Bulletin please email bulletin@mswa.org.au or write to MSWA, Locked Bag 2, Bentley DC WA 6983 General feedback or complaints please contact Liz Stewart 6454 3173 or feedback@mswa.org.au EDITORIAL COMMITTEE Greg Brotherson (Editor), Marcus Stafford (CEO), Paul Cavanagh, Sue Shapland, Nicola Washington, Ros Harman, Libby Cassidy, Caitlin Skinner, Carol Chong, Aileen Ward and Geoff Hutchinson. The Editor welcomes unsolicited submissions. All articles are subject to a reviewing process. The views expressed are those of the Authors and do not necessarily reflect the view of MSWA’s staff, advisors, Directors or officers. Our MS nurses are usually the first point of contact after the neurologist’s diagnosis of MS. LOU HATTER, MANAGER: 6454 2830 OR COMMUNITY NURSE: 9365 4888 PHYSIOTHERAPY Our team aims to provide treatment interventions to develop and maintain mobility and function. DAVE HATHORN, MANAGER: 9365 4837 OR PHYSIO DEPARTMENT: 9365 4834 OCCUPATIONAL THERAPY Occupational Therapists enable Members to continue their work and other interests for as long as possible through advice, aids and equipment. ILISSA LIEW, MANAGER: 9365 4804 OR OT DEPARTMENT: 9365 4888 SPEECH PATHOLOGY Our Speech Pathologists provide support by assessing, diagnosing and creating individualised treatment programs for Members who experience swallowing and/or communication difficulties. PAMELA WINDRAM, MANAGER: 6454 3140 DIETITIANS Dietitians are university-qualified nutrition experts who promote general health and disease prevention/management through dietary changes. PAMELA WINDRAM, MANAGER: 6454 3140 COUNSELLING, PEER SUPPORT & HEALTH EDUCATION Talking with a Counsellor creates a safe, respectful and confidential environment for you and those close to you to explore options, create change or gain understanding about your life. We have a Peer Support & Health Education Coordinator who organises peer connection & events and supports health and wellness education services. TO MAKE AN APPOINTMENT PLEASE CALL: LISA PAPAS, MANAGER: 9365 4836 OR COUNSELLING DEPARTMENT: 9365 4811 SOCIAL WELFARE Social Welfare Officers assist Members and their families to access services and supports to remain living independently at home. They specialise in case management, advocacy and sourcing funding options. KATH KNIGHTS, MANAGER: 9365 4835 INDIVIDUAL OPTIONS We provide long-term and time limited in-home supports including assistance with personal care for people with MS, to help them remain in their homes. Care and supports are provided through a combination of funding from the Department of Communities - Disability Services, and our own fundraising efforts. AILEEN WARD, MANAGER: 9365 4851 THE NDIS TEAM Our experienced team can help determine whether you may be eligible for NDIS support and assist you with your application. This includes developing an individual plan that best suits your needs. GEOFF HUTCHINSON, MANAGER NDIS BUSINESS DEVELOPMENT: 9365 4879 CAMPS & RECREATION MSWA provides separate recreation camps for Members, carers, and families, primarily funded by Lotterywest, and for a nominal cost to participants. These camps provide a break from daily routines, and strengthen friendships and support networks. COORDINATOR FOR CAMPS & RECREATION: 9365 4843 LETTER FROM THE EDITOR. ............... 3 FROM THE DESK OF THE CEO .............. 4 GENERAL MANAGER STRATEGIC SUPPORTS AND RESIDENTIAL OPTIONS . ...... 5 GENERAL MANAGER MEMBER & CLIENT SERVICES ..................... 6 MSWA FUNDED BRAIN PLASTICITY RESEARCH OFFERS HOPE FOR NEUROLOGICAL CONDITIONS MSWA COMMUNICATIONS. ................. 7 RESEARCH ROUND UP ................. 8-10 2 CONTENTS IT’S NOT TOO LATE TO PROTECT YOURSELF AGAINST THE FLU!. .............11 THOSE WHO ARE ABOUT TO ROLL OUT, WE SUPPORT YOU. ..................... 12 FACES OF OUR STAFF COORDINATORS. ....... 13 WE KNOW NEURO. ...................... 16 AUDIO BOOKS AND CHANGES TO INTER LIBRARY LOANS. ............... 17 SOUND WORKSHOP, BUNBURY MAY 2019. ..... 17 HEALING POWER OF MUSIC. .............. 18 THE CIRCLE OF LIFE. ................... 19 MORE THAN A FEELING. .................20 MSWA CAMPS 2019. ....................20 CONNECTING WITH OTHERS. .............. 21 THE NIGHTINGALES OF OUR NURSING GENERATION. .............. 22 VOLUNTEER UPDATE. ................... 23 FUNDRAISING NEWS ................ 24-25 MOTHER’S DAY CELEBRATION AT BUTLER. .... 26 SOUTHSIDE NEWS REPORT ............... 26 WORLD MS DAY 2019. ................... 27

LETTER FROM THE EDITOR WELCOME Welcome to your winter edition of the MSWA Bulletin. Readers will be pleased to learn that MSWA Board Member Professor Bill Carroll has been recognised as a Member of the Order of Australia for his significant service to neurological medicine, and to people with multiple sclerosis (MS), as part of the 2019 Queen’s birthday honours. Professor Carroll joined the Board in 1996 when the going was still hard for people with MS, but also a turning point for the better. The organisations first Supported Accommodation Facility at Fern River was underway; and after placing an intransigent Federal Government under siege for 12 months, the first disease modifying drug Betaferon was made freely available. You might also have noticed we’ve refreshed our brand which is now reflected in the magazine. Our new direction of ‘We Know Neuro’ aligns with MSWA being leaders in neuro research, services and support and becoming a one-stop shop for people living with neurological conditions. Brand, Marketing and Sales General Manager – Paul Cavanagh will provide a more detailed introduction in his article. With the recent election I’ve got high hopes that the Government will continue to back Australians living with a disability, their families and carers. The final transition to the National Disability Insurance Scheme (NDIS) across Western Australia happened on July 1 so please reach out to our NDIS team who arwe here to help answer your questions and assist with your planning process if eligible. World MS Day was another success in achieving a spotlight on people living with the condition. With over 400 events around the world it was a chance to educate the community and achieve positive changes to policies, practises and attitudes towards people affected by MS. In recognition of the day MSWA organised for some iconic Perth architecture to be illuminated. As we come to the end of the financial year and we start looking back on the year that was, I would like to mention a special thanks to our inspiring and hard-working volunteers who are an integral part of the organisation. We are honoured to have you by our side on this journey. On behalf of the Editorial Committee, I would like to thank you for your contribution in making this organisation great and capable of achieving successful results. DR GREG BROTHERSON EDITOR 3